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February 2013

NRSF Develops New Social Media to Promote Reye's Syndrome Education and Awareness

In a new Reach Out campaign to promote education about Reye's Syndrome, the NRSF has developed a presence on many social media sites. Since the flu season in 2012 - 2013 started early and hit hard, the Foundation felt it needed to extend its Reye's Syndrome Awareness reach.

"We were seeing a large uptick in phone calls from panicked parents who had given their child aspirin for flu symptoms before reading the warning label on the back of the packaging. With the down surge in Reye's Cases in the past few years, people have forgotten about Reye's. This disease has not gone away," states Cathy Zraik, administrative assistant to the board of directors at the National Reye's Syndrome Foundation. "We have to reach out where parents are spending their time, and today, that's on social networking sites."

Reye's Syndrome information can now be found on Twitter, Facebook, LinkedIn, Tackk, Pinterest, and a new blog with RS feed capabilites at reyessyndrome.wordpress.com. There are 3 Android apps now available in the google play store; Aspirin Sense and Sensitivity, A Guide to Chickenpox, and an RS Feed App with weekly updated content from the blog. New eBooks are available at smashwords.com, and include; Reye's Syndrome; Because You Need To Know, Coping With Family Stress After Reye's Syndrome, and Coping With Family Stress After Chronic Illness or Death. Ebooks can be downloaded here.

January 2013

NRSF Spokesperson, Dick Van Dyke, To Be Presented SAG Life Achievement Award

In 1987, Dick Van Dyke lost his granddaughter, Jessica Van Dyke, to Reye's Syndrome. Like so many others, Dick's relatives and friends had never heard of Reye's Syndrome prior to Jessica's death. When Dick found out about the lack of general knowledge on this childhood killer, he pledged his full support in bringing the awareness of Reye's Syndrome to the public by volunteering to become the Honorary National Chairman for the National Reye's Syndrome Foundation.

He donated his time and services to create a series of television and radio commercials for the National Reye's Syndrome Foundation to raise public awareness about Reye's Syndrome and the danger aspirin posed to children. That same year, he became the official spokesperson for the National Reye's Syndrome Foundation.

During that time, he also promoted Reye's Syndrome awareness by appearing on the Phil Donahue Show and Hour Magazine co-hosted by Gary Collins. Dick participated in the Annual Jaime Beth Slavin Celebrity Golf Tournaments in support of NRSF's Reye's Syndrome research.

At the age of 86 he shows no signs of slowing down. This year, the Screen Actors Guild will award Dick its highest honor; The Life Achievement Award.

Screen Actors Guild & American Federation of Television and Radio Artists co-president Ken Howard called Van Dyke "an enormously talented performer whose work has crossed nearly every major category of entertainment."

The 86-year-old entertainer will receive the honor at the annual Screen Actors Guild Awards ceremony in January. His humanitarian work on behalf of the NRSF will be highlighted in a special segment.

Born December 13, 1925, in West Plains, Missouri, to Loren and Hazel Van Dyke, he grew up in Danville, Illinois. He is the father of Barry Van Dyke, and older brother of actor Jerry Van Dyke, who is best known for his role on the TV series Coach. His grandson, Shane Van Dyke, is also an actor and directed Titanic II. Dick's career spans six decades.

Dick starred in the films Bye Bye Birdie, Mary Poppins and Chitty Chitty Bang Bang and in the TV series The Dick Van Dyke Show and Diagnosis: Murder. He has a star on the Hollywood Walk of Fame on Hollywood Boulevard, and he has already won a Tony, a Grammy and five Emmy awards.

Dick will be presented the performers union's most prestigious accolade, given annually to an actor who fosters the "finest ideals of the acting profession," at the 19th Annual Screen Actors Guild Awards, which premieres live on TNT and TBS on Sunday, Jan. 27, 2013, at 8 p.m. ET, 7 p.m. CT, 6 p.m. MT and 5 p.m. PT. The work he has done with the NRSF will also be showcased.

Thanks for all you do, Dick! We'll be cheering with you! Chim, Chim, Cherri!

June 2012

NRSF Produces an Andriod App: Aspirin, Sense and Sensitivity

The NRSF has created an Android App, available in the Google Play Store. It's everything aspirin; from diseases that interact with aspirin, to lists of products that do and do not contain aspirin (salicylates), to other names for aspirin. A complete reference guide to everything aspirin for those with aspirin sensitivity, for parents, grandparents and caregivers with young children: It's a must have guide to aspirin.

With so much confusion about aspirin, perpetrated in part by postings on the Internet, the NRSF thought it was time to compile an extensive amount of information about aspirin, then simplify the facts, and make it available on a large scale. It is a lot of helpful, useful information, right at your fingertips. And the information is all fact - no myth or fiction!

A donation of $2.99 helps us recoup development costs - fully tax deductible to the purchaser.

The app will be updated automatically with no charge to users as new lists are developed for the area of the app that deals with products that do and do not contain aspirin.

You can get the app here....

February 25, 2012

The Grand Statesman of Pediatrics; Dr. William K. Schubert

In August of 1976, Dr. William K. Schubert, Chief of Staff, Children's Hospital in Cincinnati, Ohio agreed to become the Medical Director of the National Reye's Syndrome Foundation.

Dr. Schubert began his residency in pediatrics at Cincinnati Children's in 1953. From 1956 to 1963, he was in private practice. During this time, he also served as an instructor to pediatricians at the UC College of Medicine and as a senior research associate at the Children's Hospital Research Foundation. In 1963, he left private practice and joined Cincinnati Children's faculty as an associate professor of pediatrics and director of the Clinical Research Center. When Dr. Schubert started at Children's Hospital Medical Center in 1963, it was, in his own words, "a small intimate operation."

During the 1970s, Dr. Schubert led centralization of the region's pediatric care into a single medical center where a critical aray of expertise, research and teaching enhanced the quality and accessibility of children's health care.

As early as 1971, Dr. Schubert, an intense supporter of medical research, along with Dr. John Partin, and Jacqueline Partin,MS, were performing research on Reye's Syndrome. He, in combination with many other researchers, published more than 35
research papers about Reye's Syndrome, and Reye's Syndrome treatment.

After 33 years of service to Cincinnati Children's Hospital Medical Center, he retired as president and chief executive officer in 1996. During his tenure, Cincinnati Children's Hospital Medical Center rose to a top-five ranking among the nation's pediatric medical centers. Dr Schubert was enshrined in the Greater Cincinnati Business Hall of Fame for his work to build the medical center into one of the nation's leading pediatric hospitals.

Often called "the pediatrician's pediatrician" or "the grand statesman of pediatrics," Dr. Schubert received numerous honors. Honors bestowed include: the Cincinnati Children's Hospital Medical Center Board of Trustees' William Cooper Procter Medallion; the Cincinnati Pediatric Society's Founder's Award; the Business Courier's Lifetime Health Care Hero Award; the Daniel Drake Medal, American Academy of Pediatrics - Davidson Award for Scientific Excellence; and the Award of Excellence and Distinguished Alumni awards from the University of Cincinnati.

In addition, the William K. Schubert Minority Tuition Assistance Scholarship was named in his honor. The scholarship program is intended to encourage minority students to seek careers in health care and to eliminate barriers that prevent minority students from attending college. Awards are granted to graduating high school students who have been accepted into college.

A diplomat in the American Board of Pediatrics, Schubert was involved in the Rotary Club of Cincinnati, Babies' Milk Fund, the Center for Quality Leadership and the Association of Ohio Children's Hospitals. He was enshrined in the Greater Cincinnati Business Hall of Fame for his work to build the medical center into one of the nation's leading pediatric hospitals.

Dr. Schubert noted his satisfaction came from the diverse responsibilities throughout his career. "I have always enjoyed caring for the patients with complicated diseases or general pediatric illness," he said. "I have enjoyed every aspect - I was happy in practice, in training, as chief of staff."

William Kuenneth Schubert, MD, died on Saturday, Feb. 25, 2012.

Bryan, Ohio, July 5, 2011 - by the National Reye's Syndrome Foundation

Bayer Drops "Baby" Aspirin

Today, in a phone call from the FDA, the National Reye's Syndrome Foundation learned that Bayer Consumer Health Care has agreed to remove the word 'baby' from all of its aspirin packaging and marketing materials. The 81mg aspirin product will now be known as Bayer 81mg Low Dose Aspirin.

The National Reye's Syndrome Foundation (NRSF) had met with the FDA on April 28, 2011 in Silver Springs Maryland, to voice its concerns about consumer misunderstanding of the use of the product, given the front panel stated 'low dose "baby" aspirin. Although Bayer Consumer Health Care maintains that their use of the word "baby" was meant to describe the product "as a smaller version of their adult 325mg aspirin" product, the National Reye's Syndrome Foundation found that consumers, especially new parents, were thinking the product was safe for children and infants. "We were receiving calls just about every day from panicked parents who thought they had just killed their child because they had not read the warning label on the back of the package. They only read the front label where it showed the word 'baby' and assumed it was safe to give their child", states Terri Freudenberger, Co-Founder of the Foundation. "We had to do something to clarify the use of this medication to the consumer so we took our concerns to the FDA."

In 1984 the FDA mandated that all aspirin products display a Reye's Syndrome Warning label on the back panel of the product after it was discovered by a team of CDC epidemiologists lead by Dr. Karen Starko, that aspirin (salicylate) could trigger Reye's Syndrome. Dr. Starko participated with the NRSF in the meeting with the FDA in April and had this to say about Bayer's decision, "This is an important step in aligning marketing and packaging information with proper use. Kudos to the National Reye's Syndrome Foundation for spearheading the conversation in this issue on behalf of children, and to the FDA for a prompt response."

Marianne Piemonte, Aspirin Committee Chairperson at the National Reye's Syndrome Foundation states, "We really have to acknowledge Bayer Consumer Health Care for their commitment to the health and well-being of children, and for their desire to properly educate consumers. The term "baby" aspirin is a misnomer. Forty years after the death of our sweet little girl I can now celebrate her short life, confident that no other parent will ever again innocently give their baby or toddler aspirin believing, erroneously, that it is safe medicine.

Former Maryland Attorney General, Joe Curran, who assisted in setting up the meeting between the NRSF and the FDA stated, "Thanks to Bayer for the agreement to remove "Baby" from bottles and marketing material, and a very special thanks to the leadership of John Freudenberger for the Reye's Syndrome Foundation programs that have made parents aware of this disease, and of course, a heartfelt thanks to the FDA for listening to our concerns."

John Freudenberger, President of the National Reye's Syndrome Foundation, states, "Bayer Consumer Health Care's decision supports the Foundation's 37 year mission to eradicate the incidence of Reye's Syndrome in children, and allows us to get closer to achieving that goal. We thank them for doing the right thing on behalf of children everywhere."

When Reye's Syndrome develops, it typically occurs when a person is beginning to recover from a viral illness like flu or chicken pox. It is a disease that affects all organs of the body; most lethally the liver and the brain, and mostly in children. Epidemiological research has shown a connection between Reye's Syndrome and aspirin (salicylate). More can be learned about Reye's Syndrome at www.ReyesSyndrome.Org.

For more information about this release, please contact;
National Reye's Syndrome Foundation
800-233-7393


Android Apps & eBooks The NRSF Blog School and Health Department Packages - Free! Talking to Tweens and Teens About Aspirin and Other Medications Join the Effort to Eradicate Reye's
We've created an App for the Android phone and tablets all about Aspirin, from lists of products containing and not containing aspirin, to drug interactions with aspirin, to diseases that aspirin negatively impacts...Learn More Our Blog is a great way to learn even more about aspirin and children, and get tips and hints about a range of things all centered around Reye's Syndrome and aspirin...Learn More The Foundation makes a special Reye's Syndrome Information package available to Schools, Health Departments, Human Resource Divisions, and to anyone who would like Reye's Syndrome information...Learn More Helping themselves, and sharing meds is a serious issue with Tweens and Teens. They do not realize the dangers involved, and often think OTC drugs are harmless. Talk to them about drugs, and Reye's... Learn More Through Awareness and Education, we can drastically lower the number of Reye's Syndrome cases. To do this, we need your help...Learn More

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© 1974 - 2013 National Reye's Syndrome Foundation, Inc
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In 1974, the National Reye's Syndrome Foundation, a children's health advocacy organization, was incorporated as a 501(c)3 charity, with a mission to eradicate the incidence of Reye's Syndrome.
The Foundation does not receive, nor seek, government funding, and relies on the generosity of donors for support of all programs.
National Reye's Syndrome Foundation 426 N Lewis St. Bryan OH 43506 800.233.7393
nrsf(at)ReyesSyndrome(dot)Org